ISSUES AND CHALLENGES FACED BY PARENTS HAVING CHILDREN WITH FACIAL DISFIGUREMENT: A QUALITATIVE STUDY FROM PESHAWAR
Main Article Content
Keywords
Issues, Challenges, Facial Disfigurement, Parents, Experiences, Nursing Care
Abstract
Background: Facial disfigurement is one of the painful, excruciating and serious concerns that affect the quality of life of the individuals and put them for certain challenges at different levels of their lives. Anyone can get affect with the facial disfigurement however it is perceived more traumatic and distressing among the pediatric population.
Aim: the main purpose of the study was to explore the issues and challenges faced by parents having children with facial disfigurement.
Methodology: A phenomenological approach was followed to conduct the study. Total 10 of the interviews were carried out through purposive sampling technique. Face to face semi structured interview were conducted through a proper study guided questions. 30 to 60 minutes were given to each interview for taking in-depth information. All the interviews will be audiotaped and notes were taken during the interview. Data was collected after getting approval from the concerned departments and participants. Data was analyzed through thematic analysis for its description and presentation.
Results: After the data analysis five of the themes were emerged from the parents’ narration and verbatim based on the retrieved codes and categories. Major themes extracted from the data were treatment related concerns, psychological issues, social challenges, financial constraints and stigmatization.
Conclusion: The study's findings conclude that parents of children with disfigurement have certain social, financial, treatment and care, psychological and social issues which put them in certain miseries to treat and care their children therefore healthcare professionals should be properly trained and pay close attention to the issues experienced by the parents. Addressing the parents’ issues well in time would help them to cope up with their problems that in turn would bring positive outcome in their children lives
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Shahla Arshad
Lecturer -Institute Nursing Sciences_Khyber medical university, peshawar
Dr.Najma Naz
Associate Professor - Institute Nursing Sciences_Khyber medical university, Peshawar
Sardar Ali
Assistant Professor - Institute Nursing Sciences_Khyber medical university, peshawar
Shazia Naz
Head Nurse- DHQ hospital layyah
Rukhsana Hanif
Charge nurse DHQ hospital Layyah
Muhammad Nadim
Nursing department, Shaukat khanum memorial cancer hospital Peshawar Pakistan
Javed Iqbal
Department of communicable diseases, Hamad medical corporation, doha, Qatar
Samina Naz
Charge nurse Medical ward - DHQ hospital layyah
Shamim Akhtar
Charge nurse, Department of nursery, DHQ hospital Bhakkar
Amir Sultan
Assistant professor / Principal Tasleem college of nursing and health sciences, swat, Pakistan.