QUALITY OF LIFE OF CHILDREN WAS ASSESSED BY PEDS QOL 4 SCALE
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Keywords
Quality of life, heart disease, Childhood morbidity, and mortality, Life expectancy
Abstract
Introduction - heart diseases are one of the important causes of childhood morbidity and mortality. With advance in medical and surgical techniques life expectancy of children with heart diseases increased so concern shifted toward how quality of life is affected with various type of heart disease and what are important factors which affect QOL. Most heart diseases in children are attributed to congenital malformation of heart but children can also acquire some form of heart disease, most common being rheumatic heart disease.
Objective: This is a cross sectional observational study, all children with heart disease were enrolled and their demographic and clinical information was collected using pre designed and pre tested proforma. Assessment of quality of life in children with heart disease and various factors affecting it.
Method: All Children between 2 yrs. to 12 yrs. of age who are diagnosed case of heart disease via 2D echocardiography were included in the study after taking informed written consent from a guardian of the child.
Children with other chronic disease like CKD, CLD were excluded from study.
Quality of life of children was assessed by peds QOL 4 scale. The results were analyzed by SPSS software version 25.
Results: There were 60 children out of which 28, 17 and 15 are in age group 2-4, 5-7 and 8-12 years respectively, 52 % were male and 48% were female. According to their residence 52% were urban and 48 % belong to rural area. It is found that children belonging to higher socioeconomic status groups experiencing better QOL (quality of life) in all domains (p value 0.015), children with cyanotic heart disease shows poor QOL as compared to acyanotic and rheumatic heart disease (p value 0.04). Children with surgical management showed better QOL as compared to children on medical management. No any significant association was found between QOL age, sex, residence, and maternal educational status.
Conclusion: In children with heart disease, quality of life is affected by type of heart disease, medical or surgical management, socioeconomic status. It was found that surgical management improves quality of life.
References
2. Uzark K, Jones K, Slusher J, Limbers CA, Burwinkle TM, Varni JW. Quality of life in children with heart disease as perceived by children and parents. Pediatrics. 2008 May 1;121(5):e1060-7.
3. Ghai OP, Gupta P, Paul VK. Text book of essential pediatrics. 9th edithition. India CBS 2019; P- 398
4. Drakouli M, Petsios K, Giannakopoulou M, Patiraki E, Voutoufianaki I, Matziou V. Determinants of quality of life in children and adolescents with CHD: a systematic review. Cardiology in the Young. 2015 Aug;25(6):1027-36.
5. Wotherspoon JM, Eagleson KJ, Gilmore L, Auld B, Hirst A, Johnson S, Stocker C et al. Neurodevelopmental and health‐related quality‐of‐life outcomes in adolescence after surgery for congenital heart disease in infancy. Developmental Medicine & Child Neurology. 2020 Feb;62(2):214-20.
6. Vance YH, Jenney ME, Eiser C, Morse RC. Issues in measuring quality of life in childhood cancer: measures, proxies, and parental mental health. The Journal of Child Psychology and Psychiatry and Allied Disciplines. 2001 Jul;42(5):661-7.
7. Varni JW, Seid M, Kurtin PS. PedsQL™ 4.0. Reliability and validity of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales in healthy and patient populations. Medical care. 2001 Aug 1:800-12.
8. Varni JW, Seid M, Rode CA. The PedsQL™. measurement model for the pediatric quality of life inventory. Medical care. 1999 Feb 1:126-39.
9. Krol Y, Grootenhuis MA, DestrÉe-Vonk A, Lubbers LJ, Koopman HM, Last BF. Health related quality of life in children with congenital heart disease. Psychology and Health. 2003 Jan 1;18(2):251-60.
10. Xiang L, Su Z, Liu Y, Huang Y, Zhang X, Li S et al. Impact of family socioeconomic status on health‐related quality of life in children with critical congenital heart disease. Journal of the American Heart Association. 2019 Jan 8;8(1):e010616.
11. Rometsch S, Greutmann M, Latal B, Bernaschina I, Knirsch W, Schaefer C et al. Predictors of quality of life in young adults with congenital heart disease. European Heart Journal-Quality of Care and Clinical Outcomes. 2019 Apr 1;5(2):161-8.
12. Amedro P, Dorka R, Moniotte S, Guillaumont S, Fraisse A, Kreitmann B et al. Quality of life of children with congenital heart diseases: a multicenter controlled cross-sectional study. Pediatric cardiology. 2015 Dec;36(8):1588-601.
13. Loup O, von Weissenfluh C, Gahl B, Schwerzmann M, Carrel T, Kadner A. Quality of life of grown-up congenital heart disease patients after congenital cardiac surgery. European journal of cardio-thoracic surgery. 2009 Jul 1;36(1):105-11.
14. Abassi H, Huguet H, Picot MC, Vincenti M, Guillaumont S, Auer A et al. Health-related quality of life in children with congenital heart disease aged 5 to 7 years: a multicentre controlled cross-sectional study. Health and quality of life outcomes. 2020 Dec;18(1):1-4.
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